Shaina Mims, a 31-year-old woman, has been in the fear of "who doesn't know when it will happen again" since she had epilepsy at work in 2008.
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Shaina Mims
She was diagnosed with a "chronic, recurrent, unexplained" neurological epilepsy compared to a seizure that would bite her tongue and have a bruise. Although this epilepsy only affects the brain, But in a sense, the situation is even worse.
For Shaina, her life is full of anxiety and fear of seizures. She is afraid that she will be in public, afraid of being attacked in front of strangers, afraid of being attacked while driving. And all of this is not as good as the fear of re-awake after the attack.
When people witnessed her epileptic seizures, she saw her empty eyes, stiff legs, arms like a puppet, and she was faced with a very embarrassing situation after she was awake. Shaina said that what she couldn't stand most was to face people's eyes. "I can only sit there and cry because I don't remember what happened just now." She felt deeply desperate.
Medically, it takes 10 minutes for a person to fully recover from a seizure. But Shaina said she needed an hour to fully recover.
To get rid of the fear of epileptic seizures, Shaina decided to participate in the Johns Hopkins Institute's research on EpiWatch applications.
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Currently, EpiWatch is online at the Apple Watch Appstore
EpiWatch, an app on Apple Watch, uses Apple's ResearchKit open source software architecture to capture data from Dr. Nathan Crone and Dr. Gregory Krauss, the neurology of Johns Hopkins University School of Medicine. Professors develop research, the most powerful thing about this app is the ability to "recognize seizures."
EpiWatch application introduction film
"Identifying the onset of epilepsy" is not a simple task. Over the years, countless researchers and developers have worked to develop devices that recognize and predict seizures, and a large number of paper studies and applications have emerged in this area. Some researchers want to use the health data recorded by wearable devices to identify similar patterns of each seizure to predict; some researchers want to use brain waves directly to predict seizures; some researchers have brain holes Wide open, using the dog's specific ability to detect the onset of epilepsy.
Although researchers and institutions in the field have invested a lot of energy and resources, the episode of epilepsy is still elusive. Seizures are inherently unpredictable. Up to now, our best science and technology are still at a loss in the face of this problem.
Let's go back and talk about Shaina, a 31-year-old epileptic. In the study by Johns Hopkins, Shaina is very important because she is one of the patients in the group who can feel the "precursor of the attack." Feel the harbinger of the disease before seizures? How to say it is a bit mysterious.
"The aura is unique to everyone," Shaina said. "And it's hard to describe this feeling for people without aura." "In most cases, I feel like I am sitting on a carousel. My consciousness is constantly spinning. Sometimes I feel like I am in a tunnel, and a gust of wind blows over my head."
In fact, the data generated by people with "precursions" is more valuable. Because they have more precise time from onset to complete recovery, and more accurately record the physical and mental effects of epilepsy. Therefore, these important biomarkers can be found at the earliest stages of seizures.
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Dr. Nathan Crone and Dr. Gregory Krauss
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